Thursday, 23 June 2016

Not so Healthy Living

Its funny how things in life can change almost overnight, and especially anything to do with your health. We live on a very narrow tightrope with our health, something that many try and ignore and others completely disregard until its too late.
I am coming up to my 7 month of treatment, 9 sessions I think. It really has gone very well and I am incredibly lucky, it is obviously working, there is little sign of the Mets in my Lungs or the lump in my chest, and the Tumour on my Kidney is certainly a bit smaller and more importantly the density is changing which indicates the blood supply to it is changing. The side effects have really been very minor, certainly compared to what happens to some poor souls on something like IL2, but I am starting to notice them and they are disrupting my life. Over the first 5 months or so there did seem to be a set pattern, 1st week after treatment, no sleep, 2nd week very disturbed sleep, 3rd week sleep like a baby, but that has all changed. A month ago I was very positive, getting into quite a good routine, eating healthily and plenty of exercise, but the last couple of weeks have knocked me sideways, I am still exercising and eating sensibly, I haven't touched alcohol for over a month, but my sleep is almost non existent. I have tried cycling late in the evening to wear me out, I have tried relaxing and reading before I sleep, I have tried Herbal concoctions and Meditation, nothing has worked, my body feels exhausted but that's it, I can only liken it to standing on a crowded train, where you are desperate to sit down, but know you have two hours of standing. I have been getting bad tremors in my hands and feet, the hands are not a problem, often happens when I am out and about, disconcerting more than anything, but the feet come on with vengeance as soon as I lie down, a bit like Restless Leg, where you have this constant need to keep  twitching, making relaxing and sleep impossible.
Until you go lengthy periods without sleep you just don't realise how much it impacts on your life, on the face of it as a side effect it seems  very minor, but after a couple of weeks you realise you are only existing, which is no life at all.

Tuesday, 7 June 2016

Healthy Living

I am now in my 6 month of treatment, and I have to say it is going pretty well. The CT scans have shown a general reduction in the various tumours and lumps, to be honest I am awful at digesting information from specialists, I know I have a large Tumour on my remaining Kidney but the other various lumps and bumps I am a little vague about, maybe that is a good way to be, anyway, the treatment is obviously working and quite quickly as well. Side effects have been quite minimal, various strange feelings, tingling, flu symptoms and trouble sleeping, lack of sleep has been the biggest problem.
As the injections are 3 weekly, I was going through a cycle of getting no sleep the first week, a little the second week then sleeping like a log the third, just in time to have my next dose. So this is where the Healthy Living  comes in, I have now made a plan to actively sort my health out. I am now in my third week of this, 40 mile cycle each week, sensible eating, plenty of fish, salad and fruit, and plenty of reading to relax, rather than watching DVD's, and it is going well, I am starting to notice the difference with the exercise, not so much its getting easier, because it never dose, but more my attitude to it, much more positive and much more relaxed when on me bike, the furthest I have been is 21 miles, which is not really any big deal, but I felt pretty comfortable doing it, and it was on my MTB which is always a lot harder work. Apart from the obvious physical and mental benefits of exercise, I am now getting tired in a good way, so am sleeping a lot better.
In some ways I can be quite a strong character, and my attitude to the treatment is obviously helping, I am incredibly lucky to be still here, and I am  very lucky to have got onto this clinical trial, so I really don't have anything to moan about, a few sleepless nights and rough days is nothing compared to what many people have to go through.


Bridgewater Canal

Lymm Railway